Guidestar Research White Paper

Early diagnosis is related to improved outcomes for those who have been affected by this disease.Please help us continue our mission to raise awareness and educate both the medical and public communities, as well as raising funding for research.The combined board will initially include 12 members from the Foundation Center and seven from Guide Star, with new bylaws allowing for up to 25 board members.

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There will be a set of board committees, each made up of a mix of board members from the two parent organizations.

In place now are plans for Audit, Finance, Governance, and Executive committees.

The Foundation Center was launched in 1957 and Guide Star in 1996.

The fundamental principles of both organizations have been transparency and providing access to data.

Guide Star was the first non-governmental agency to provide consumers with access to the federal Form 990, initially on CD-ROMs.

Digitization continued as the Internet evolved and now those forms are easily accessible and specific information can be easily found.Those non-profits with Gold Star Status, of which we are one, are in the top 0.5% of all non-profit organizations on Guide Star.The Gold Level is all about asking for qualitative information about your organization.Candid’s data tools on nonprofits, foundations, and grants are the most comprehensive in the world.The Foundation Center and Guide Star, the two largest data and information nonprofit organizations in the United States, are merging in a deal that took about two years to consummate but was at least a decade in the making. The combined organizations will have a worldwide reach with data on foundations, individual nonprofits and what information is searched by nonprofit executives and the general public.The re-design shifted the emphasis from charity overhead costs to progress and results, a reflection of a broader database in the non-profit world about measuring and communicating impact.Upon updating our Guidestar profile, it reconfirmed our Gold Status for Transparency.Candid finds out where that money comes from, where it goes, and why it matters.Through research, collaboration, and training, Candid connects people who want to change the world to the resources they need to do it.We will be working towards attaining the Platinum Level, for which we need to measure various metrics to see how we measure progress and results of what we are doing within the Myocarditis Foundation’s mission and goals.We know that education and raising awareness of this rare disease is key to early diagnosis.

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